Children with Chronic Conditions

Children with Chronic Conditions 1

Children with Chronic Conditions 2

Children with Chronic Conditions 3

Children with Chronic Conditions Works in Progress

253 - Adjusting to Healthcare at Home: Caregiving Duration and Confidence during Acute Illnesses

273 - Frequencies and Types of Unmet Needs of Families with Children and Youth with Special Health Care Needs Undergoing a Preparedness Intervention

276 - Influenza and COVID-19 Vaccination Rates in a Prospective Multicenter Tracheostomy and Home Ventilation Cohort

282 - Understanding the Care Needs and Experiences of Adults with Spinal Muscular Atrophy and Defining The Transition of Teenagers with SMA to a Multi-disciplinary Adult Program: The TTEEN SMA Study

295 - Past and Current Care Practices for Neonates with Complex Medical Needs: A Scoping Review to support Clinical Program evaluation

252 - A Qualitative Study of Emotions in the Adaptation Process of Caregivers of Children with Medical Complexity

254 - Associations between Usage of a Cloud-based Longitudinal Care Plan and Patient- and Family-Centered Outcomes for Children with Medical Complexity

255 - Be Hurricane Ready: Developing a Wholistic Patient-Centered Approach to Hurricane Preparedness

256 - Characteristics and Outcomes of Home Parenteral Nutrition among Children with Severe Neurological Impairment

257 - Children with Medical and Social Complexity: Caregiver Perspectives on Navigating the Healthcare, Education and Social Services Systems of Care

258 - Days at Home: Experiences of Caregivers of Children with Medical Complexity

259 - Differences in COVID-19 Testing Perceptions from Caregivers of Children with Medical Complexity by Rurality Status

260 - Family Experiences of Care for Children with Medical Complexity in a Largely Rural Catchment Area: A Qualitative Study

261 - Neighborhood socioeconomic deprivation and hospital length of stay in children with medical complexity

262 - Post-traumatic stress disorder in parents of children with medical complexity: prevalence and associations

263 - Prevalence of Mental and Behavioral Health Diagnoses in Children with Medical Complexity

264 - Rural-Urban Differences in Continuity of Ambulatory Care for Children with Medical Complexity

265 - Supporting children with special health care needs in the medical home

266 - The Challenges of Managing Pediatric Polypharmacy for Children with Medical Complexity in the Primary Care Setting

267 - Trust between parents of children with medical complexity and their child's physicians: facilitators and barriers

268 - "It took weeks for us to hold her”: The Experience of Parents of Children with Major Anomalies in the NICU

269 - Characteristics of Complex Patients in a Multidisciplinary Diagnostic Consultation Program

270 - Comparative Effectiveness of Pneumonia Prevention Strategies in Children With Neurologic Impairment: A Model Validation With Clinical Data

271 - Continuity of Care and Emergency Department Utilization Among Children And Adults with Complex Chronic Conditions

272 - Disparities in the Oral Health of Children with Medical Complexity

274 - How are pediatric tertiary care hospitals structured to respond to the needs of children with medical complexity during acute deteriorations? A landscape study in Canada

275 - Indications and Outcomes of High Flow Nasal Cannula in the Home Setting among Children and Youth

277 - Parental Presence at the Bedside of Children with Medical Complexity in Pediatric Care – A Scoping Review

278 - Pneumonia Prevention in Children with Neurologic Impairment: How Rurality and Social Determinants of Health Affect Care

279 - Prediction of Pediatric Chronic Critical Illness in Infants Admitted to a Level IV Neonatal Intensive Care Unit

280 - Prevalence and Type of Technology Dependence in Hospitalized Children

281 - Understanding Referral and Enrollment in a Pediatric Complex Care Program: Disparities & Predictors

283 - Unmasking their Voices: Challenges Faced by Families of Children with Medical Complexity throughout the COVID Pandemic

284 - A Scoping Review of Pediatric Feeding Tube Weaning Interventions

285 - ‘Medical-Technology’ and ‘Family-Centred-Feeding’ measures for caregivers of children with medical complexity (Co-CMC).

287 - Care Integration Needs for Young Children with Medical Complexity

288 - Caring for Children with Medical Complexity (CMC) who require technology: A Curriculum for Senior Pediatric Residents

289 - Caring for Children with Medical Complexity Beyond the Hospital: The Work Life Experiences of Nurses in Homecare

290 - Exploring Pediatric Residents’ Reflections on Communicating with Families of Children with Medical Complexity (CMC): A Qualitative Study

291 - Family Partnerships in Developing Priority-Setting Methods to Measure Family Well-Being for Children with Medical Complexity

292 - Fostering Holistic Care for Children with Medical Complexity through an Interprofessional Family-Led Narrative Medicine Workshop Series

293 - Parent Perspectives on Education to Support Hospital-to-Home Discharge for Children with Invasive Mechanical Ventilation

294 - Parents' Perceptions of Delays and Disabilities in their Children with Invasive Mechanical Ventilation

296 - The Experience of an Interdisciplinary Complex Surgery Collaborative for Children with Medical Complexity Undergoing Major Orthopedic Surgeries

297 - Trends in Prevalence and Healthcare Spending for Children with Complex Chronic Conditions using Medicaid (2012-2021)

298 - Variation in Hypertension Disorder Type by Race and Ethnicity in Youth Referred to Subspecialty Care

WIP 120 - A Tri-Partnership Virtual Handover Intervention to Optimize Transition to Adult Primary Care for Youth with Medical Complexity

WIP 121 - Family-Reported Goals for Utilizing a Consultative Complex Care Clinical Program for Children with Medical Complexity

WIP 122 - Prevalence of Overweight and Obesity Status among Children with Medical Complexity: a PEDSnet Study

WIP 123 - Primary Initiative: Baseline Survey for Children's Hospitals Establishing Programs to Track and Treat Children with Medical Complexity

WIP 124 - Relationship between Gut Microbiome and Symptoms during Acute Gastrointestinal Stress in Children with Medical Complexity

WIP 125 - School Nurse Perspectives on Care Coordination for Children with Medical Complexity

WIP 126 - Side Effects Following Topical Corticosteroids Usage in Pediatric Atopic Dermatitis

WIP 127 - Subspecialty Appointments and Resource Utilization in Pediatric Long-Term Ventilation