PAS Postgraduate Course: Hot Topics in Pediatric Bioethics

Friday, May 3, 2024

7:00 AM – 1:15 PM ET

Location: Metro Toronto Convention Centre: 201 F

Chair(s)

Jonathan Fanaroff, MD, JD (he/him/his)

Professor of Pediatrics
UH Rainbow Babies & Children's Hospital / Case Western Reserve University School of Medicine
Cleveland, Ohio, United States
Naomi Laventhal, MD, MA, FAAP, HEC-C (she/her/hers)

Professor - Associate Chair for Career Development
Pediatrics
University of Michigan Medical School
University of Michigan, Department of Pediatrics, C.S. Mott Children's Hospital
Ann Arbor, Michigan, United States

Slides

Disclosure(s):

Jonathan M. Fanaroff, MD, JD: Monogram Orthopedics (Ongoing) (Products/Services: Ownership Interest including individual stocks, stock options, excluding diversified mutual funds)

Naomi T. Laventhal, MD, MA, FAAP, HEC-C: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Session

Description: Hot Topics in Pediatric Bioethics will explore a a wide range of controversial issues facing Pediatricians and Pediatric Subspecialists caring for neonates, children, and adolescents. Each issue will be presented by an expert, leaving time for robust discussion. The areas covered include 1) Neonatal ethics at the margin of gestational viability 2) Pharmaceutical ethics including drug shortages and high-cost medications 3) Reproductive Justice and Gender Identity including the impact of recent Supreme Court decisions and legislation 4) Controversies in End-of-Life care including futility, terminal ECMO decannulation and Donation after Cardiac Death 5) Risks and Benefits of Genetic Testing in Pediatrics 6) Emerging technologies and Experimental therapies including Artificial Intelligence

All PAS Friday Ticketed events can be purchased during the PAS registration process. If you have already registered, you may return to your registration and add additional ticketed events.

Learning Objectives:

Describe the risks and benefits of genetic testing in pediatric patients.
Develop an approach to shared ethical decision making with parents facing the delivery of an extremely premature infant.
Effectively navigate ethical controversies surrounding emerging technologies and experimental therapies.

Presentations:

7:00 AM – 7:15 AM ET

Welcome and Introduction
Speaker: Jonathan M. Fanaroff, MD, JD (he/him/his) – UH Rainbow Babies & Children's Hospital / Case Western Reserve University School of Medicine
7:15 AM – 8:00 AM ET

What's New at the Margin of Gestational Viability (Discussion to follow presentation)
Speaker: Stephanie K. Kukora, MD (she/her/hers) – Children's Research Institute, Children's Mercy Hospital
8:00 AM – 8:40 AM ET

Pharmaceutical Ethics: Soaring Costs, Drug Shortages, Vaccines (Discussion to follow presentation)
Speaker: Helen Williams, MD, MAB (she/her/hers) – Emory University
8:40 AM – 8:55 AM ET

Break
8:55 AM – 9:05 AM ET

Panel - Reproductive Justice and Gender Identity - Introduction at Beginning
Speaker: Kyle Brothers, MD, PhD (he/him/his) – Norton Children's Research Institute
9:05 AM – 9:20 AM ET

Navigating the Post-Dobbs Landscape
Speaker: Alaina Pyle, MD, FAAP (she/her/hers) – Connecticut Children's Medical Center
9:20 AM – 9:35 AM ET

Ethical Considerations in Gender-Affirming Care
Speaker: Julia Taylor, MD, MA, HEC-C (she/her/hers) – University of Virginia
9:35 AM – 9:50 AM ET

Discussion
Speaker: Kyle Brothers, MD, PhD (he/him/his) – Norton Children's Research Institute
9:50 AM – 10:00 AM ET

Break
10:00 AM – 10:10 AM ET

Introduction: Controversies in End-of-Life Care
Speaker: Naomi T. Laventhal, MD, MA, FAAP, HEC-C (she/her/hers) – University of Michigan Medical School
10:10 AM – 10:25 AM ET

Futility
Speaker: Deena Levine, MD – St. Jude Children's Research Hospital
10:25 AM – 10:40 AM ET

Terminal ECMO Decannulation
Speaker: Erica Andrist, MD, MBE (she/her/hers) – C.S. Mott Children's Hospital
10:40 AM – 10:55 AM ET

Donation After Cardiac Death
Speaker: Carrie M. Henderson, MD (she/her/hers) – Louisiana State University Health Sciences Center
10:55 AM – 11:10 AM ET

Discussion
Speaker: Naomi T. Laventhal, MD, MA, FAAP, HEC-C (she/her/hers) – University of Michigan Medical School
11:10 AM – 11:40 AM ET

Lunch Break
11:40 AM – 12:20 PM ET

Genetic Testing: Benefits and Harms (Discussion to follow presentation)
Speaker: Katharine P. Callahan, MD MSME – Children's Hospital of Philadelphia
12:20 PM – 1:00 PM ET

Ethical Issues Around Emerging Technologies / Experimental Therapies Discussion to follow presentation)
Speaker: Marin Arnolds, MD (she/her/hers) – University of Michigan Medical School
1:00 PM – 1:15 PM ET

Q&A Wrap Up
Speaker: Jonathan M. Fanaroff, MD, JD (he/him/his) – UH Rainbow Babies & Children's Hospital / Case Western Reserve University School of Medicine