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Evaluation ViewAttendees 47

APA SIG

Children with Chronic Conditions

Community Pediatrics

General Pediatrics

Health Services Research

Hospital Medicine

Palliative Care

Trainee

Session Type: APA SIG

APA SIG: Complex Care and Patient and Family Centered Care Combined - Partnering with patients in shared decision-making - overcoming barriers and improving facilitators of engagement (Part 1)

Sunday, May 5, 2024

8:00 AM – 9:30 AM ET

Location: Metro Toronto Convention Centre: 714

CE: Live CME: 1.5

SIG Chair(s)

Catherine Diskin, MB BCh BAO (she/her/hers)

Assistant Professor
The Hospital for Sick Children
Toronto, Ontario, Canada

Slides
Emily Goodwin, MD (she/her/hers)

Associate Professor of Pediatrics
General Academic Pediatrics
University if Missouri Kansas City School of Medicine, Children’s Mercy Kansas City
Kansas City, Missouri, United States
Kathleen Huth, MD MMSc

Assistant Professor of Pediatrics
Pediatrics
Boston Children's Hospital / Harvard Medical School
Boston, Massachusetts, United States
Ruchi Kaushik, MD MEd MPH (she/her/hers)

Medical Director of Education and Research
Imagine Pediatrics
Bellaire, Texas, United States
Diana Cejas, MD, MPH (she/her/hers)

Assistant Professor of Neurology
University of North Carolina at Chapel Hill School of Medicine, United States
MC

Meg Comeau, MHA (she/her/hers)

Senior Project Director/Principal Investigator
Boston University School of Social Work
Milton, Delaware, United States
DL

Divya Lakhaney, MD (she/her/hers)

Associate Professor of Pediatrics
Columbia University Vagelos College of Physicians and Surgeons
New York, New York, United States
Stephanie Squires, MD (she/her/hers)

Clinical Assistant Professor
Lucile Packard Children's Hospital Stanford
Palo Alto, California, United States
Lindsey Daon, MD (she/her/hers)

Clinical Instructor
Mayo Clinic Children's Center, United States

Disclosure(s):

Catherine Diskin, MB BCh BAO: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Emily J. Goodwin, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Kathleen Huth, MD MMSc: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Ruchi Kaushik, MD MEd MPH: Imagine Pediatrics (Ongoing) (Products/Services: Ownership Interest including individual stocks, stock options, excluding diversified mutual funds)

Diana Cejas, MD, MPH: UCB Pharmaceuticals (Terminated, January 21, 2023) (Products/Services: Speaker Honorarium including speakers bureau, symposia, and expert witness); Zynerba Pharmaceuticals (Terminated, September 30, 2022) (Products/Services: Research Support including clinical trials & the principal or named investigator)

Meg Comeau, MHA: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Divya Lakhaney, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Stephanie Squires, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Lindsey D. Daon, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Session

Description: Models of care for children with medical complexity (CMC) often cite shared decision-making, partnership or engagement with family caregivers and patients, and adopting a family-centred approach to care. The current literature will be critically examined in the context of clinical practice. Clinicians and family leaders will consider the barriers and facilitators to engagement, including reflecting on partnership versus engagement, before the group considers opportunities for effective engagement in clinical practice.

Learning Objectives:

Critically examine the literature on shared decision-making in caring for children with medical complexity, including facilitators and barriers to effective partnership between clinicians and families.
Describe the value of partnership with patients and their families in clinical practice from the perspective of patients, families, and clinicians.
Consider potential strategies to support effective and meaningful engagement in clinical practice.

Presentations:

8:00 AM – 8:20 AM ET

Introduction and Overview of the session
Speaker: Catherine Diskin, MB BCh BAO (she/her/hers) – The Hospital for Sick Children
8:20 AM – 8:40 AM ET

The clinical experience …. facilitators and barriers, engagement
Speaker: Naomi Gryfe Saperia, PhD (she/her/hers) – The Hospital for Sick Children
8:40 AM – 9:00 AM ET

The literature tells us …
Speaker: Francine E. Buchanan, MLIS, PhD (she/her/hers) – SickKids Hospital
9:00 AM – 9:15 AM ET

Round table discussion with large group feedback
Speaker: Stephanie Squires, MD (she/her/hers) – Lucile Packard Children's Hospital Stanford
9:15 AM – 9:30 AM ET

Round table discussion with large group feedback
Speaker: Lindsey D. Daon, MD (she/her/hers) – Mayo Clinic Children's Center