TBCK Foundation

The mission of The TBCK Foundation is dedicated to serving families impacted by TBCK Syndrome through accelerating patient-led research, advocacy, education, and a dynamic system of support. Our vision is a relentless pursuit to help every patient diagnosed with TBCK Syndrome find the best quality of life. Our commitment is to diversity, equity, and inclusion. We continue to elevate voices of diversity, people with disabilities, women, LGBTQ+ community, and marginalized groups  to reflect a wide range of vantage points that bring insight to our efforts. The TBCK Foundation is dedicated to families and is determined to impact the progression of research for treatment. Our plans include:
1.  Helping to promote and fund research of TBCK Syndrome. 
2.  Engaging, empowering, and educating families impacted by TBCK through resources and advocacy opportunities. 
3.  Working alongside researchers to develop protocol for the most up-to-date and best practices for TBCK treatment.