Adolescent Medicine
Children with Chronic Conditions
General Pediatrics
Health Services Research
Public Health
Parag Shah, MD MPH (he/him/his)
Physician
Lurie Children's Hospital
Chicago, Illinois, United States
Thomas Davis, MD (he/him/his)
Associate Professor Internal Medicine and Pediatrics
Internal Medicine
Geisinger Commonwealth School of Medicine
Danville, Pennsylvania, United States
Rita Nathawad, MD (she/her/hers)
Associate Professor of Pediatrics
Pediatrics
UF Health
Saint Johns, Florida, United States
Session
Description: Healthcare transition (HCT), the shift from pediatric to adult-based health systems, is best thought of as a process, not an event. The process includes many different stages, including introduction, readiness, transfer, and follow up. Defining and measuring a successful transition to adult care, particularly for those with chronic conditions or medical complexity, requires investigation into which outcomes are most relevant and should be measured. The Healthcare Transition and Disease Self-Management SIG will focus this session on reviewing, ranking, and discussing the various outcome measures that have been studied in the current HCT literature.
The session will begin with an overview of previous HCT outcomes research as it relates to transition to adult care, including perspectives from providers, caregivers, and patients. We will then organize these outcomes within the Institute for Health Improvement (IHI) Quintuple Aim Framework: health equity; clinician well-being; patient experience; improved population outcomes; and lower costs, to help clarify, organize, and evaluate these outcomes. Participants will then engage in an interactive activity, based on the well-known bracket system of the annual NCAA College Basketball Tournament (‘March Madness’), to rank the various outcomes that are commonly used in transition research. Finally, we will facilitate a robust large group discussion around the results of the activity, which will give all attendees some possibilities of outcomes they could measure in their own transition work.
Agenda:
Housekeeping (5 min)
Introduction to current outcomes (25 min)
Break (5 min)
May Madness Outcomes Tournament (30 min)
Guided Discussion/Q&A (20 min)
Wrap Up (5 min)
Speaker: Parag Shah, MD MPH (he/him/his) – Lurie Children's Hospital