APA SIG: Complex Care and Patient and Family Centered Care Combined - Elevate your Impact: Engaging Families in Education, Research, and Policy (Part 2)

Sunday, May 5, 2024

11:00 AM – 12:30 PM ET

Location: Metro Toronto Convention Centre: 714

CE: Live CME: 1.5

SIG Chair(s)

DL

Divya Lakhaney, MD (she/her/hers)

Associate Professor of Pediatrics
Columbia University Vagelos College of Physicians and Surgeons
New York, New York, United States

Slides
Kathleen Huth, MD MMSc

Assistant Professor of Pediatrics
Pediatrics
Boston Children's Hospital / Harvard Medical School
Boston, Massachusetts, United States
Ruchi Kaushik, MD MEd MPH (she/her/hers)

Medical Director of Education and Research
Imagine Pediatrics
Bellaire, Texas, United States
Emily Goodwin, MD (she/her/hers)

Associate Professor of Pediatrics
General Academic Pediatrics
University if Missouri Kansas City School of Medicine, Children’s Mercy Kansas City
Kansas City, Missouri, United States
Stephanie Squires, MD (she/her/hers)

Clinical Assistant Professor
Lucile Packard Children's Hospital Stanford
Palo Alto, California, United States
Lindsey Daon, MD (she/her/hers)

Clinical Instructor
Mayo Clinic Children's Center, United States
Catherine Diskin, MB BCh BAO (she/her/hers)

Assistant Professor
The Hospital for Sick Children
Toronto, Ontario, Canada
MC

Meg Comeau, MHA (she/her/hers)

Senior Project Director/Principal Investigator
Boston University School of Social Work
Milton, Delaware, United States

Disclosure(s):

Divya Lakhaney, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Kathleen Huth, MD MMSc: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Ruchi Kaushik, MD MEd MPH: Imagine Pediatrics (Ongoing) (Products/Services: Ownership Interest including individual stocks, stock options, excluding diversified mutual funds)

Emily J. Goodwin, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Stephanie Squires, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Lindsey D. Daon, MD: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Catherine Diskin, MB BCh BAO: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Meg Comeau, MHA: I do not have any relevant financial / non-financial relationships with any proprietary interests.

Session

Description: This is the second session for the combined Complex Care and Patient and Family-Centered Care SIG. Family engagement is essential to the field of pediatrics. While the focus has predominantly been on engaging families in the care of an individual child, there is growing recognition of the importance in engaging families on systems-level initiatives that impact the care that they receive. Families who interact frequently with the healthcare system, particularly those who have children with complex medical needs, have unique perspectives that are vital in the development, and implementation of practices and services that impact the care of all children.

This workshop will help participants identify ways to incorporate family engagement into their scholarship. It will include symposium-style talks on the importance of family engagement in scholarship and showcase real-world examples of family engagement in education, research, and policy. This will be followed by a moderated panel discussion with the speakers. We will end with a small-group exercise where participants can develop ways to engage families in new or existing projects/initiatives followed by a large group report out to share ideas. We will conclude with a business meeting for each of our respective interests groups.

Learning Objectives:

Recognize the importance of engaging families in scholarship
Demonstrate different ways patients and families can partner with providers in the areas of education, research, and policy
Develop a plan for engaging families in scholarship based on the clinicians' personal interests

Presentations:

11:00 AM – 11:10 AM ET

Importance of Family Engagement in Scholarship
Speaker: Naomi Gryfe Saperia, PhD (she/her/hers) – The Hospital for Sick Children
11:10 AM – 11:20 AM ET

Importance of Family Engagement in Education
SIG Speaker: Kathleen Huth, MD MMSc – Boston Children's Hospital / Harvard Medical School
SIG Speaker: Cara L. Coleman, JD, MPH (she/her/hers) – University of Virginia School of Medicine
11:20 AM – 11:30 AM ET

Family Engagement in Education in Research
SIG Speaker: Snezana Nena Osorio, MD MS (she/her/hers) – Weill Cornell Medicine
SIG Speaker: Normaliz Rodriguez, MD – USF/CAMLS
11:30 AM – 11:40 AM ET

Family Engagement in Policy
SIG Speaker: Carolyn C. Foster, MD, MS (she/her/hers) – Ann & Robert H. Lurie Children's Hospital of Chicago
11:40 AM – 11:45 AM ET

Moderated Q&A: The previous 3 speakers will be panelists for a moderated Q&A session. Facilitated by Drs. Goodwin & Squires
Speaker: Emily J. Goodwin, MD (she/her/hers) – University if Missouri Kansas City School of Medicine, Children’s Mercy Kansas City
11:45 AM – 11:50 AM ET

Moderated Q&A: The previous 3 speakers will be panelists for a moderated Q&A session. Facilitated by Drs. Goodwin & Squires
Speaker: Stephanie Squires, MD (she/her/hers) – Lucile Packard Children's Hospital Stanford
11:50 AM – 12:00 PM ET

Facilitator for Break Out Group 1
Speaker: Lindsey D. Daon, MD (she/her/hers) – Mayo Clinic Children's Center
12:00 PM – 12:10 PM ET

Facilitator for Break Out Group 2
Speaker: Catherine Diskin, MB BCh BAO (she/her/hers) – The Hospital for Sick Children
12:10 PM – 12:20 PM ET

Facilitator for Breakout Group 3
Speaker: Meg Comeau, MHA (she/her/hers) – Boston University School of Social Work