Children with Chronic Conditions
Developmental and Behavioral Pediatrics
General Pediatrics
Health Equity/Social Determinants of Health
Neonatology
Pediatric Nutrition
Pulmonology
Raye-Ann deRegnier, MD
Professor of Pediatrics
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, United States
Yvette Johnson, MD, MPH
Neonatologist
Cook Children's Hospital
Westworth Village, Texas, United States
RICKI GOLDSTEIN, MD
Professor of Pediatrics/Neonatology
University of Kentucky
Lexington, Kentucky, United States
Deborah Campbell, MD (she/her/hers)
Neonatologist
Pediatrics
Albert Einstein College of Medicine
Bronx, New York, United States
Session
Description: Infants born preterm with severe bronchopulmonary dysplasia (BPD) may have prolonged hospitalization and ongoing needs for respiratory support after discharge. Unfortunately, BPD also is associated with increased risk for cerebral palsy, developmental delays and autism during the first years and cognitive impairments later in childhood. Supporting development and family wellness for these patients during prolonged hospitalizations and after discharge may be complicated by ongoing health concerns and readmissions.
The purpose of this session will be to share different management strategies used to support infants with BPD and their families. Some hospitals have developed BPD programs that manage infants during inpatient hospitalizations for up to one year or more, hoping to avoid tracheostomy and minimizing the burden of care for families after discharge. In other situations, infants are discharged home with tracheostomy or supplemental oxygen. Different strategies may be needed for developmental support and ongoing bonding of parents and infants. In this session, we will share practices and outcomes from both of these types of care.
Speaker: Audrey Miller, MD – Ohio State University College of Medicine and Nationwide Children’s Hospital
Speaker: Connie Williams, MD, PhD (she/her/hers) – McMaster University
Speaker: Sarah A. Sobotka, MD, MSCP (she/her/hers) – University of Chicago Division of the Biological Sciences The Pritzker School of Medicine