Pediatric Emergency Medicine Fellow Children's Hospital of Philadelphia Philadelphia, Pennsylvania, United States
Background: Pediatric asthma is highly prevalent and racial differences are persistent and poorly understood despite efforts to standardize asthma care. Patient Reported Outcomes (PRO) including measures of asthma symptom burden and quality of life may provide novel means for obtaining direct patient health information to improve equity and quality of care. There is limited data on the utility of PRO implementation in a pediatric cross-sectional setting like the emergency department (ED). Objective: This prospective study aims to describe the results of newly implemented pediatric asthma specific PROs in a diverse population at a large, urban ED and determine the relationships between PROs, sociodemographic features, and clinical characteristics. A representative subset of participants will undergo in-depth semi-structured interviews to characterize the perceptions and experiences with PROs. Design/Methods: Enrollment began 7/24/2023 of asthma patients, ages 2 to 17 years, who during the ED encounter receive asthma directed therapy including a steroid and beta-agonist during the study period and completed the PROMIS Parent Proxy Asthmatic short form. Electronic Health Record review is conducted on all PRO results to describe aggregate demographic and clinical characteristics. Data analysis will include, 1) descriptive summary of PRO results with accompanying demographic features and clinical characteristics, 2) univariate analysis to evaluate association between PROs and sociodemographic factors (race, ethnicity, language, insurance, and Child Opportunity Index), 3) univariate analysis to evaluate association between PROs and clinical characteristics (triage acuity, length of stay, disposition, and 72-hour ED revisit). Purposeful sampling of subjects for in-depth semi-structured interviews will be conducted with four subgroups of 10 subjects based on race and ED disposition. Interview transcripts will undergo thematic analysis. Study enrollment and data collection is ongoing and anticipated through January. Preliminary enrollment is promising with 25 eligible participants.