Hope for HIE

Hope for HIE is the premiere worldwide patient advocacy and support charitable organization for neonatal and pediatric-acquired Hypoxic Ischemic Encephalopathy, providing comprehensive, longitudinal support programs and services, education, and awareness, for over 9,000 families worldwide.

On the advocacy and research front, Hope for HIE is relentlessly working to advance research and clinical care through collaboration, elevating the lived experiences of patient-families globally in the pursuit of therapeutic advancement, and ultimately prevention, to decrease the incidence and impact of HIE, reducing disparities of care, and improving equitable access to support and research for families, worldwide.

With credentialed direct support providers on staff - a licensed social worker, and certified child life specialist - in addition to trained volunteers, families have access to comprehensive programs and services to support their psychosocial well-being, no matter what their journey with HIE may look like. 

Hope for HIE started the first global HIE awareness month in April 2016, now reaching millions worldwide to elevate the unmet needs of the HIE community, and showcase the incredible, resilient, and beautiful global community of families, researchers, clinicians, and community partners.